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Support Groups

Caregiver Support Groups

The caregiver support group is available to provide encouragement and comfort to those who are caring for someone living with ALS. Please join us for an opportunity to share your feelings, develop relationships, receive emotional support, and discuss common caregiving issues with other caregivers. 

This support group is open to all current caregivers.

Please reach out to the Chapter at 412.821.3254 or for support group dates.

Frank Mayak Support Group (Johnstown)

The ALS Clinic at the John P. Murtha Neuroscience & Pain Institute hosts a free monthly support group for individuals with ALS, their families, caregivers, and friends. This casual forum is a chance to find out about the latest clinical trials, learn new ways to ease the physical and emotional stress of ALS or just get together with special friends who truly understand what you’re going through. Teleconferencing capabilities are available to those who are unable to attend but would like to participate.


Jan Goodard
Please call our Chapter for more information: 412-821-3284

Conemaugh East Hills
1450 Scalp Ave
Johnstown, PA 15904

Online Resource Group

A monthly online resource group provides the opportunity for patients, caregivers, family, and friends to participate in online educational programs on topics related to caring and living with ALS. 

Alternative Resource Group Options

Options are available for patients and caregivers who are interested in support groups in other areas of western Pennsylvania. 

Powerful Tools for Caregivers

Powerful Tools for Caregivers is an educational series designed to provide you with the tools you need to take care of yourself. This program helps family caregivers reduce stress, improve self-confidence, communicate feelings better, balance their lives, increase their ability to make tough decisions and locate helpful resources. Classes consist of six sessions held once a week.

For more information, including information about Support Groups, please call the Care Services department at 800.967.9296 or by email at