ALS Ice Bucket Challenge Progress


June Chapter Highlights

The 2019 National ALS Advocacy Conference is Next Week!

Challenge Me Advocacy

This Sunday, representatives from all ALS Association chapters will unite in Washington D.C. to advocate for our 2019 public policy priorities

Read more about the conference on the National ALS Advocacy page.

You can also follow the advocacy journey of the Western PA Chapter advocates through our social media channels.


Help Kickoff the Pittsburgh Walk to Defeat ALS on June 23rd!

2019 Pittsburgh Walk Kickoff

Join the movement and help kickoff the Pittsburgh Walk to Defeat ALS! The kickoff is your opportunity to network with team captains, learn about new fundraising tools and Walk updates, and share your story. Come enjoy this motivational and inspiring tailgate party before we spend the afternoon at the ball park for a Pirates game against the Padres.

*This event is open to all team captains, people living with ALS, and guests.

Click here to RSVP or call 412-821-3254.


28th Annual Jay Simon Golf Classic Raises $17,000 for the Norma L. Simon ALS Patient Equipment Fund

The 28th Annual Jay Simon Golf classic was held on Friday, May 17, 2019 at Beaver Valley Golf Club in Beaver Falls, Pennsylvania. The outing has now raised $287,000 since the fund’s inception.
Twenty-three teams participated in the four-player scramble event. The Simon family, including Jay’s father, Jack, sister, Janette, and brothers, Jett, Jeff and Judd were in attendance as the four brothers played as a team for the seventh consecutive year.  

Perennial winner, Mark Jenks, received the Furthest to Travel Award, coming from Seattle, Washington. Randy Smith, Brunswick, Maine needs Mark to cancel one of these years so he can earn the popular award. The newest addition to the 20 Year Club is Bill Blechman. Bill attended his 20th of the 28 outings and received the coveted JSGC Green Golf Glove.  

Krisa Estermyer also was recognized for her annual administrative contribution and received a one of a kind Green Scarf!

Flight winners included the following teams: 

1: Nathan Elias, Dave Elias, Alex Skal, Pat Keller

2: Jim Steinkirchner, Andy Krall, Jordan Beck, Brian Dent

3: Jerry Fleeson, Teri Fleeson, John Pitaro, Randy Cathcart

4: Doug Legursky, Ken Duchi, Chris Patton, Kris Rodgers

Skill Shot awardees were Judd Simon, Frank Randazza, Ken Fraser, Jim Sadowski, Brian Dent and Al Vallano.

A special thanks to Kristi Marsili of The ALS Association who enjoyed the day at the crossroads and supplied baskets for the Winner’s Choice Raffle. Also, thanks to Cutter and Buck, First Trust Portfolios and Hefren-Tillotson, Inc. for the array of gift items that were donated.  

History of the Jay Simon Golf Classic

In 1992, Jay organized the first golf outing to create a means to gather friends, family, and business associates once a year as a way to stay in touch and enjoy a great time together on the golf course.  From 1992 through 1999, the purpose of the outing was simply “for the benefit of a darn good time”.  

Then, in 2000, with the passing of his Mom, Norma Simon, from ALS (“Lou Gehrig’s” disease), the outing added a purpose. Through the ALS Association of Western Pennsylvania, a fund was established in honor of Norma Simon to provide equipment that is not covered by insurance to families who have been stricken by this horrible disease. The annual golf outing raises money to support this fund.'

Save the Date!
The 29th Annual Jay Simon Golf Classic will be held on Friday, May 15, 2020. To be placed on the invitation mailing list, contact Jay at (888)774-0990 or


Thanks for Making the Erie Highmark Walk for a Healthy Community a Success

Last weekend, members of our Erie ALS community participated in the Highmark Walk for a Healthy Community and raised over $15,000 to benefit services and programs for those living with ALS and their families. 

Click here to view the 2019 Erie Walk photo album on Facebook.

We're still accepting donations! Make your gift today by clicking here.

Register today and start fundraising for our 2019 events!

CEO Soak | June 20, 2019 | PPG Place Plaza

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Johnstown Walk | July 27, 2019 | University of Pittsburgh Johnstown

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Pittsburgh Walk | September 14, 2019 | Point State Park

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