December Chapter Highlights
This year, on Giving Tuesday (December 3rd), we were able to come together to raise a total of $25,190 to support ALS Multidisciplinary Clinics functioning
in Western Pennsylvania! In addition, we came in 13th place out of over 400 Give Big Pittsburgh organizations and captured the most donations between 1 and 3 am, earning us an additional $500 towards our goal!
THANK YOU to everyone who participated and donated to make this Give Big Pittsburgh event such an overwhelming success!
With over $25,000, we are able to provide 23 fully funded clinic days for patients in our community living with ALS!
To show our thanks, the Chapter staff has compiled a short video.
The 2019 Impact Report is Here!
We are proud to announce that our 2019 Impact Report is finally here!
If you haven't already, make sure to check it out and see our featured story, "ALS Multidisciplinary Clinics: Navigating the ALS Journey"
with Brett and Jeannine Schoenecker.
View the entire digital version here of the piece here.
12 Bars of Charity Holiday Pub Crawl
Looking for a fun way to give back this holiday season? There's only one week left to register as an individual for the event! Team registration is now closed and sweatshirt sizes are no longer guarenteed.
The event will take place on December 13, 2019 from 8PM-12AM. With your purchase of a ticket you will recieve:
- A Charity TEAM Color Sweatshirt (super comfy - trust us!)
- $15 donation to the charity of your choice
- FREE Shuttle Rides to take you to 12+ Bars
- Drink Specials at All 12+ Bars
- Free Admission at all 12+ Bars
It's still not too late to join the LIGHT GRAY TEAM!
For more info, click here.
2020 Dick's Sporting Goods Pittsburgh Marathon
Registration is open for this year's Pittsburgh Marathon! So, this year, don't just run, run for a reason. With just under six months until race day, now is the time to join Team Challenge ALS and start training for the big day!
Event date: May 3, 2020
Please note: The registration process has changed this year! Follow our how-to guide to register for a charity here.
ALS Multidisciplinary Clinics: Navigating the ALS Journey
Be on the lookout for our end of year mailing, featuring Brett and Jeannine Schoenecker! Click the link below for a sneak peek at their story and how our Chapter uses funding to support ALS Multidiciplinary Clinics in western PA.
Get your sneek peek here.
ALS Research Webinars
ALS Clinical Trial Pipeline Series - Winter 2019
Speaker: Jeremy Shefner, M.D., Ph.D., FAAN, Barrow Neurological Institute
Thursday, December 12, 2019
2:00 p.m. EST
Dr. Jeremy Shefner will review the ALS clinical trial pipeline and answer questions about the current state of clinical research.
ALS Care Services Webinars
Power Wheel Chairs: Critical Components and Accessories to Enhance and Prolong Function
Speaker: Wade Lucas, PT, DPT, ATP/SMS
Monday, December 16, 2019
2:00 p.m. EDT
Complex power wheelchairs are custom designed for maximum benefit of the user. Wade Lucas, PT, DPT, ATP/SMS, Clinical Education Manager, Western US with Quantum Rehab shares the benefits of various PWC features.
What You Need to Know About Quitting Your Job to Provide Care: Developing a Plan to Maximize Independence in Providing and Receiving Care
Recording / Presentation Slides (PDF)
Leaving the workforce can have unexpected emotional, financial, medical, and social repercussions that should be thought through carefully. Guest speaker, Rebekah Keizer MA, BCC, shared what you need to know before making this choice and provided a detailed look at the many resources that can be utilized to help maximize independence for those providing and receiving care.
How to Gain Access to VOCSN and Overview of Reimbursement Process
Recording / Presentation Slides (PDF)
Five therapies. One Device. VOCSN integrates five separate medical devices, including a ventilator, oxygen concentrator, cough assist, suction, and nebulizer, into one multi-function ventilator. Learn how to gain access to VOCSN and the reimbursement process.
Click here to access all past Care Services webinars.
New ALS Medicare Resource Line Provides Assistance and Support
We are happy to introduce a new resource to the ALS community resulting from our expanded relationship with the Patient Advocate Foundation (PAF). The ALS Medicare Resource Line provides people living with ALS, their family members and caregivers free, direct telephone access to Medicare experts who to help navigate eligibility and enrollment coverage that impact access to care.
For assistance, individuals can call 1-844-244-1306. Materials to promote this new resource through your social media channels can be found here along with a one-page information sheet for distribution, and the program logo.