February Local Highlights
OUR MISSION
To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.
The 2024 Walk to Defeat ALS® events have been announced!
Registration opens February 1st!
ERIE
June 22 | UPMC Park
Erie Walk Kickoff Event: May 24 | Erie SeaWolves Vs. Altoona Curve | UPMC Park
JOHNSTOWN
July 27 | University of Pittsburgh Johnstown
Johnstown Walk Kickoff Event: March 8 | Johnstown Tomahawks Vs. Northeast Generals | 1st Summit Arena
PITTSBURGH
September 14 | Point State Park
Pittsburgh Walk Kickoff Event: June 4 | Pirates Vs. Dodgers | PNC Park
It's will be the Pittsburgh Penguins vs. the Detroit Red Wings Thursday, April 11, but we are ALL vs. ALS for this ALS Awareness game at PPG Paints Arena.
The Red Wings beat the Penguins 6-3 in Detroit on October 18th in Part One of this RivALS matchup and now Pittsburgh has a score to settle! The puck drops at 7 p.m. You don't want to miss it!
Get your tickets NOW for Part Two of this RivALS matchup!
A $10 donation will be made to The ALS Association for each ticket sold through our group link!
If you would like to donate tickets to the Fund a Family program and sponsor one of our ALS families to attend the game, please email Amber.Letters@als.org.
♿️For ADA seating accommodations, email Derick Woodard at dwoodard@pittsburghpenguins.com.
Get your game day gear here:
Pittsburgh fans: https://www.bonfire.com/pittsburgh-vs-als/
Detroit fans: https://www.bonfire.com/detroit-vs-als/
Save the Date for the 2024 CEO Soak Pittsburgh August 8 at the PPG Place Fountain!
Registration opens February 1st!
For more information, connect with Amber Letters.
412.866.5798 | amber.letters@als.org
2024 Pittsburgh Marathon registration is now open!
For more information, connect with Anna Patsch.
412.357.8814 | anna.patsch@als.org
Fundraising events help us to continue providing essential resources to our ALS community. The ALS Association funds national & global research initiatives, national & state advocacy efforts, and local care services & programs. Your involvement can help to make a direct impact on people living with ALS and their families rigth now!
For more information, connect with Development Director Amie Olson.
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DONATE ONLINE TODAY!
Do you have a passion for supporting the ALS community through fundraising and relationship building?
Apply now to be a part of our ALS Association team!
Development Manager – Western PA
The ALS Association offers comprehensive local care services and programs for people living with ALS and their families in western Pennsylvania. Learn more about local resources.For more information contact Care Services Director Jill Kerr.
SUPPORT GROUPS
Support is something we all need during certain stages of our lives in order to cope with difficult situations. For most people, an ALS diagnosis is beyond a stressful life event. Our support groups provide a helpful setting in which people living with ALS, families impacted by ALS, and caregivers can get reliable information, find a supportive network of people in similar circumstances, and a safe place to share experiences, fears, and concerns. A support group can provide connection and hope for a good quality of life for anyone affect by ALS.
Caregivers Support Group
VIRTUAL & IN-PERSON (416 Lincoln Ave, Millvale)
Saturday, February 17
9:30-10:30 a.m.
After registering, you will receive a confirmation containing the virtual meeting link.
For more information or in-person accomodations, contact ryan.tappe@als.org.
The group meets on the 3rd Saturday of the month from 9:30-10:30 a.m.
Living With ALS Support Group
VIRTUAL & IN-PERSON (416 Lincoln Ave, Millvale)
Saturday, February 17
11:00 a.m.-12:00 p.m.
After registering, you will receive a confirmation containing the virtual meeting link.
For more information or in-person accomodations, contact ryan.tappe@als.org.
The group meets on the 3rd Saturday of the month from 11:00 a.m. -12:00 p.m.
Life After ALS Support Group
VIRTUAL & IN-PERSON
If you are interested in joining our Life After ALS Support Group in 2024 please contact ryan.tappe@als.org.
OTHER VIRTUAL SUPPORT GROUP OPTIONS:
Click the support group date and time below to register.
After registering, you will receive a confirmation containing the virtual meeting link.
ALS Support Group: February 1 | 6:30 p.m.-8:00 p.m. EST
Caregivers Support Group: February 8 | 6:30-7:30 p.m. EST
Living with ALS Support Group: February 13| 1:00-2:00 p.m. EST
ALS Support Group: February 13 | 6:00-7:30 p.m. EST
After registering, you will receive a confirmation containing the virtual meeting link.
Newly Diagnosed Support Group: February 15 | 1:00-2:00 p.m. EST
Caregivers Support Group: February 23| 1:00-2:00 p.m. EST
Monday, February 26 | 2 p.m. ET
BUILDING RESILIENCE WHEN YOU'RE AFFECT BY ALS: MENTAL TOUGHNESS AND COURAGE
Presented by Amber N. Johnstone, MSW, LISW-S
LEARN MORE: Archived Care Services Webinars
View previous issues of Care Matters here.
Our State Roadmaps project measures how effective public policies are serving the ALS community in all 50 states and Washington, D.C. The Roadmaps establish a baseline for where states are with regard to top state policy priorities, supply clear policy steps and give advocates high-quality tools to use when engaging with legislators at all levels of government.
Find out how you can get involved in state public policy priorities!
TAKE ACTION!
For more information about ALS advocacy in Pennsylvania contact our Managing Director of Advocacy Alex Meixner at alex.meixner@als.org.
Are you interested in making an impact in 2024? Become a volunteer and help us support our ALS community.
To learn more about volunteering, contact Managing Director of Volunteer Engagement John Coyne at john.coyne@als.org.
2023 Mission Impact Report
HAVE YOU SEEN THE NEW 10 THINGS TO KNOW SHEETS
My ALS Journey™ is a new interactive tool designed to help guide you to necessary resources, advice, and support, if and when you need them.
By sharing your specific symptoms as you go, you will be able to stay informed of the latest treatment options and prepare for conversations with your care team.
Start YOUR journey today: myalsjourney.org
View previous issues of Research Matters.
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