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July Chapter Highlights

"We Can't Wait"

 For the last three and half decades, The ALS Association has been the only national non-profit fighting ALS on every front. Our work has driven progress in global research, advanced care, raised awareness through public education, and empowered people affected by ALS to live their lives to the fullest.

But despite these gains, ALS remains a fatal disease.
Help us find a cure. We can’t wait until this is over.

Become an ALS Ally. Join our Sustained Giving Program.

To ensure that our current level of support is sustained, we are asking you to join us as an official ALS Ally by committing to a monthly donation to The ALS Association Western PA Chapter.

with social distancing restrictions and state funding limitations, 80% of our Chapter’s funding is at risk and we’re uncertain when things will go back to “normal”.

The ALS Allies monthly giving program is a promise to our community that they will never be alone in their ALS journey. We will join forces and be their ALS Ally.  

When you support our essential services through monthly giving, we can put more focus towards creating a world without ALS.  

 For a monthly donation of $20 or more, we will send you a coffee mug with our vision, “Creating a World without ALS”, proudly inscribed. By becoming an ALS Ally, you will bring us one step closer to that vision.  

Learn more and read about Joan Gaspersic's experience as an #ALSAlly

 

Become an ALS Social Media Ambassador

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Ambassadorship is a fun and easy way to volunteer with our Chapter! Simply sign up to receive #ALSAmbassador emails by reaching out to our Marketing Department
(kelsey@cure4als.org, danielle@cure4als.org)  and our Chapter will provide you with the latest scoop on upcoming Chapter programs, events, projects, and

campaigns, and provide curated content to help you spread ALS Awareness! Our Chapter is active on Facebook, Instagram, and Twitter. You can sign up to be an
ambassador on any OR all of these channels. 
 
What We’re Asking Ambassadors to Do 
In addition to reading #ALSambassador emails: 

● Add/ Friend Request The ALS Association Western PA Chapter on your
favorite social media platforms. 
● Instagram: @alsa_wpa 
● Facebook: @ALSWPA 
● Twitter: @TheALSAWPA 
● Share your stories and why you support our Chapter– maybe an upcoming
event like Walk, a recent blog post, or anything we’re posting about! 
● Post curated content provided via email and use a dedicated hashtag when we
encourage you to do so – for instance, tell others “I am an #ALSambassador” to
show your support for those living with ALS.

 

The Johnstown Walk to Defeat ALS is Turning 15!

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This year’s Johnstown Walk to Defeat ALS®, presented by Stoystown Auto Wreckers, marks the 15th year that those in the Johnstown area have come together to raise funds and awareness for those in the community living with ALS. The first “Johnstown Walk to D’Feet ALS” was held in 2006 with a crowd of 278 walkers who raised over $58,000. The walk has since grown to 620 walkers raising over $118,000 in 2019. The Johnstown Walk to Defeat ALS continues to be a community event that honors those we have lost and raise funds to help those currently battling ALS.
We look forward to recognizing 15 years of the Johnstown Walk to Defeat ALS with you and your family.

LEARN MORE 

Register: Johnstown Walk to Defeat ALS®

For more info/questions contact Jena at jena@cure4als.org

 

Johnstown Team Week

It's time to rally your team for Team Week! Starting July 1 and ending on July 6th, event staff will be sending out daily challenges to help you reach your goals while winning some awesome prizes!

***Please note, the 2020 Johnstown Walk To Defeat ALS is not canceled, it is moving to a remote event. Each team captain will receive a walk kit with everything needed to plan their own mini-walk/event. Register today and kickoff your fundraising!

 


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Thank you to our Sponsors!

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The Pittsburgh Walk to Defeat ALS is Coming to your Neighborhood!

Please note, the 2020 Pittsburgh Walk To Defeat ALS is not canceled, it is coming to your neighborhood! Each team captain will receive a walk kit with everything needed to plan their own mini-walk/event. Be sure to check in with your team captain for your walk day plans. Register today and kickoff your fundraising!
 
Questions/concerns please contact Jena McEwen at jena@cure4als.org

 

 Special thanks to our presenting sponsor: 

 

 

 

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Pittsburgh Walk Kick Off Party

Special thank to all who joined our virtual Walk Kick Off Party event! For those who couldn't make the event, view the entire party here

 

2020 CEO Soak

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DATE CHANGE!

REMINDER: The 4th annual ALS CEO Soak event has been rescheduled for August 20, 2020.
We checked the weather, and it looks like this summer is going to be a hot one! Get your company involved and raise funds for #ALS to see your boss get #soaked in the PPG Fountains in downtown Pittsburgh.

Will your boss make it into the fountain?

Find more information or register here!

If you are interested in getting your company involved, please contact Amie Hackimer at amie@cure4als.org or 412-821-3254.

 Follow us on LinkedIn for updates on this event @The ALS Association Western Pennsylvania Chapter


Connecting ALS

If you haven't already, make sure to listen and follow the Connecting ALS podcast! This is a weekly podcast produced by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter. On the channel, you'll hear the latest in research and technology developments, highlighted advocacy efforts, and personal stories woven through the ALS community.
Listen now on Facebook or your favorite podcast app

 

Caregiver Support Group

Date: July 18th, 2020

Time: 9:30-10:30 am

RSVP to Sandra Thompson at sandra@cure4als.org or call 412.821.3254 for meeting info


 

Living with ALS Meeting

*Support group specifically for those living with ALS

Date: July 18th, 2020

Time: 10:00-11:00 am

RSVP to Sandra Thompson at sandra@cure4als.org or call 412.821.3254 for meeting info

 

 Webinars 

Checking on the Global Fight Against ALS

On this episode, Mike and Jeremy commemorate Global ALS/MND Awareness Day with members of the International Alliance of ALS/MND Associations and get an update on the fight against ALS motor neurone diseases around the world. They are joined by a powerhouse lineup of guest who are leading our fight: Catherine Cummings, executive director of the International Alliance, Gethin Thomas, executive director of research for MND Australia, and Nick Goldup, director of care improvement at the MND Association of England, Wales and Northern Ireland and a board member of the International Alliance. Also joining the discussion and setting the stage is Calaneet Balas, president and CEO of The ALS Association and board chair of the International Alliance.

Telemedicine For ALS Care: A ‘House Call’ by the Multidisciplinary Team

Monday, July 20, 2020
2:00 p.m. ET
Register here
After registering, you will receive a confirmation email containing information about joining the webinar.

What does telemedicine look like? Zachary Simmons, MD, Director of the ALS Center at Penn State Health M.S. Hershey Medical Center, will be sharing information related to accessing interactive ALS multidisciplinary care via telemedicine.

How to Stay Connected in a Changing Environment

Recording / Presentation Slides (PDF)

Changes in disease progression, or the physical and social environment can present challenges to communication. This webinar covers a review of tips and tools that support key communication in multiple environments.

 

Click here to access all past Care Services webinars.

 

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