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Donna Boring
Welcome to My Fundraising Page
| Event: | Johnstown Walk |
| Date: | Saturday, July 24, 2021 |
| Team: | Donna's Divas |
https://alsadotorg.wordpress.com/2018/05/25/donna-boring-laughing-it-is/
This is what I shared in The House of Representatives. This is real. This is raw. This is me. This is my story.~~
My name is Donna Boring and I was diagnosed with ALS when I was 37 years old. I was recently divorced and unsure of my future. My children were 7,13 and 17 years old at the time. I walked around in a fog for months.
This disease has robbed me of teaching my daughters normal things like how to style their hair and do their make up.
There was no more riding bikes, shooting hoops or playing at the park. Now it was time for doctors appointments and rearranging the furniture so that I could use adaptive equipment in the house.
Simple things people do everyday, I can no longer do. Things like brushing my teeth, putting on my clothes, even blowing my nose or scratching an itch. Can you imagine what that is like?
After a period of depression, I realized I had to snap out of it so I could be the best Mum possible.
Once I was connected with the ALS Association, I became involved in the ALS community and began to mentor newly diagnosed patients and provide them with information about the disease and how to get services and assistance.
I have also done numerous interviews, hosted blood drives and participated in the ALS walk. Our team name was appropriately named Donna's Divas.
Most recently I had the opportunity to film a national PSA for the national ALS Association.
My family has been very supportive in my journey.
I may not be speaking to you with my own voice, however I will still be heard. The physical, emotional, and mental fortitude to make this trip today and to live daily with ALS takes an immense amount of energy. My goal today is to make a powerful impact so that when you hear the words ALS, you will remember my story.
If I have to be the face of ALS it's not a bad face to have.
Thank you for taking the time today to hear my story about living with ALS.~~
Then I played my public service announcement.
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease though support is bringing researchers closer to an answer. In the mean time it costs an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.
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Donna's donors
joined the movement!
Donna Boring
$300.00
Donna Owens
$50.00
Mrs. Elizabeth L. Stiffler
$40.00
Women of the Moose Hastings Chapter
$100.00
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